- Tributenick harris
- CrowdfundingYour Campaign
- Ambassadorslead the roar
- Wallsyour voice
- Spread The Wordwe need your voice
- Donatejoin us
In 1997, I discovered a tick. My MD said, \"If you get a rash come in for treatment if not don\'t worry.\" About 9 mos. later I gradually became very sick, was hospitalized and treated with IV Ceftin for 6 weeks after receiving a positive test result using CSF. Since then life has been a rollercoaster of research, meds., supplements, PICC lines, and alternative treatments along with lots of pain, brain fog, bed rest and feelings of abandonment. It is so frustrating to be told that you don\'t fit the profile, are depressed, neurotic, need hormones, stressed and best of all don\'t look sick when you know it is very real and painful. Feeling powerless I chose to fight back by educating whenever and where ever possible. Anyone sitting or standing next to me get\'s asked, \"What do you know about Lyme Disease?\". My health is declining. I had to sell my home and I am out of money. I am blessed and extremely grateful to my dear friend who has taken me in and supports me through the bad days. It is my desire to do all that I can to create awareness, educate and hopefully protect others from this debilitating and life altering disease.
I became more tired. I couldn\'t play sports as well as I used to be able to.
I became very sick 13 years ago after multiple encounters with ticks. It wasn\'t until about 3 years later I learned you can become sick with Lyme without getting the bull\'s eye rash. I am getting better. I feel it is my duty to educate as many people as I can.
I\'ve wrestled Lyme for over 15 years, suffering from fatigue, headaches, pain, gastrointestinal problems and seizures. I\'ve had more blood draws, MRIs, lumbar punctures and diagnostic nerve blocks than I can count. I\'ve been infected three separate, distinct times, each time receiving the \"standard of care\" - 2 weeks of doxycycline. I\'ve tried pain management meds, acupuncture, massage, chiropractic care and lifestyle changes. My life is vastly different than what I planned, but I\'m rewriting my goals. I want to use my life to serve others, to shine a light on causes I\'m passionate about. Lyme Disease is my disability, but Iif sharing my struggle helps ease another\'s, it will be worth it.
I have had LD over thirty years. I was finally diagnosed with CLD and TBD in 2013 by a LLMD. I attend a Lyme support group, and I have a blog: lymelifescapeswithcaroline.com I am 52 years old and I had to retire as a psychotherapist because I lost the ability to speak. I have done a lot of research of the studies of biofilms etc. I am on a treatment with an integrative LLMD. Although I am housebound, I have the ability to connect with others and let them know they are not alone. IDSA and the CDC should be ashamed because their guidelines not only affect the non treatment in this country; other countries take a lead from the CDC. I\'m going to attend the May Day Project.
Long story short, I was diagnosed with Lyme after my freshmen year of college. The last three years have been tough, but a blessing in disguise. I\'ve spent as much, if not more time researching this disease than I have for my classes and I\'m extremely lucky to have felt well enough to do both. Many have helped me along the road to recovery and I want to do the same for those who feel overwhelmed by this awful disease.
Myself and my entire family fell sick with Lyme Disease in the fall of 2013. With much ambition, we have all recovered. I was hit the hardest, and nearly admitted myself to the hospital. There was a day when I never thought I would be able to function normally again, yet, here I am, a mother of 3 and back on the track of life alongside my husband. I sought help in the right direction, which is why I recovered quicker than most. I had an amazing LLMD, and joined a wonderful forum where many of the members provided emotional support as well as tremedous insight which fostered my healing. I want to make a difference, I talk about lyme alot on Facebook, but I want to do more than just that. After everything I have been through, it is surreal how little is understood and how many people are misdiagnosed, as was I initially. As a pharmacist, I want to somehow work with and help lyme disease patients thru my profession. I strongly believe that becoming a social amabassador would be an excellent way to begin this journey.
I am an independent mother of four. Two of my children were most likely born with Lyme. I too, have Lyme Disease. I am well versed, self taught, through literature in which I have found to be true and most hopefully correct. I am still \\\"jumping through hoops\\\" and educating medical personel, those who will listen anyhow. I\\\'m not a physician, yet feel I know much more about Lyme than any physician knows ore dares to admit in our small community. Yet many more people are being diagnosed here. Many asking to be tested. Even though the tests aren\\\'t as accurate as they could be, we are still going up in numbers as far as CDC Positive. I want to brig awareness in a louder, more helpful way. I want to see people get treatment. I myself, along with my children need better and more treatment. It begins with knowledge. And this community simply lacks it. Allow me to help. I can do anything with God, I\\\'m ready to be proactive.
I have family members suffering from Lyme disease and would love to get involved.
I was recently diagnosed with late stage Lyme disease in November 2013, and currently receiving treatment. My life has been a living hell for many, many years. Before contracting this illness, I was an avid runner and participated in many racing events. The timeline suggests that I was bit while running in one of these races in June 2009. It\'s possible it was a 2nd bite due to my personal history. June 2009, my symptoms exasperated with a vengeance, experiencing every symptom on the Lyme list, including a serious psychiatric episode. I was divorced in 2004 and a single mother of 4 children with No alimony. In attempts to improve my circumstances, I returned to school to finish my education and life-long dream of becoming a LCSW. I graduated with a MSW in June 2012. shortly thereafter, I experienced a complete physical collapse.. In the process I have lost everything, including my house, my car, and any item worth selling. I feel passionate about becoming an ILADS ambassador due to experience in policy work and also various fundraising. My dream for the future is to combine my MSW, with my Lyme story to promote awareness, make policy change, and overall help people suffering with Lyme disease. Please consider my application.