Social Ambassador Profiles

These amazing people have taken on the task of being LymePowerOfUs Social Ambassadors. They are dedicated and passionate and want to transform that dedication into actions that increase awareness of Lyme disease, raise funds to train physicians and support LymeTap, and put an end to the growing epidemic of tick-borne diseases. Their stories are sometimes heart wrenching, often very sad, but more often than not filled with inspiration and hope. These are the faces and stories of people that are making a difference. Find out how you can join them.

jacqui rickaby
About jacqui

3 months ago I visited our family in Florida, and came back home to the Uk with more than your usual souvenier. Unbeknown to me I had been bit by a tick. 7 weeks later I am being treated for Lymes Disease and it was only diagnosed by the Doctor on duty checking me into the hospital after a serious bout of sickness, she recognised the bite, everyone else thought it was a mole. Before I was fit and healthy and now I am rebuilding my life, at the beginning of a journey to re-build my health back,

warrington, cheshire, UK

Janette Warren
About Janette

Lack of any understanding or education in our system kept a chronic illness a \"mystery\" for over 2 decades allowing it to worsen. Everyone said it was \"chronic fatigue syndrome\" and \"candida\". I almost died from an unknown liver etiology, have almost died at night from \"air hunger\" with the establishment saying it was anxiety. Had to drop out of a nursing program. Lost family, friends, love life, career. Spend all my $ on \'getting well.\" Spent the cost of purchasing a new house on my body since 1992. Suffered insomnia for all those years due to the infections in my nervous system. NOBODY, EVER, asked me if I had been bit by a tick, mosquito, spider, etc. My tenacity and conviction to BE HERE, and BE PRODUCTIVE opened doors, so that I could get better, which I am so much better now. Being an Upledger CranioSacral, Lymph Drainage & Visceral Manipulation Therapist and massage since 1978, my lifelong passion is helping others. I have also had the extreme privilege to work in Dr. Klinghardt\'s clinic and learn much about lyme, to help myself as well as see first hand the horrific effects it has on people, long-term. It is a nightmare. I share what I\'ve done, from ASEA redox signaling molecules, to H202, ozone, antibiotics and sweating.

Salem, OR, US

Jeff Grasso
About Jeff

I have recently been diagnosed with Lyme after many years of aches, pains, headaches, fatigue and ultimately numbness. My general practitioner did not understand what I had and discounted Lyme as a possibility based on a simple test. I suffered for years without knowing the cause of my pain. Luckily I had a family friend who had some experience with Lyme disease and begged me to see a LLD. Once I did my whole world turned around. Although I am still dealing with this disease I feel I am on the right path and want to do what I can to spread information that may help others that are unaware.

new Rochelle , New york, US

Jeremy McClain
About Jeremy

I developed Lyme disease after a traumatic work-related brain injury. After the acute injuries of my head trauma healed, I experienced extreme myalgia and malaise. My doctors never thought to consider Lyme disease and instead misdiagnosed me with Chronic Fatigue Syndrome. We know now that I had previously been infected with the bacteria, although it wasn\'t until my trauma that my immune system was compromised, allowing them to flourish. I have been denied support and benefits by medical and workers compensation insurance and am awaiting a decision on disability insurance. The irony is that these institutions wear you down through the bureaucratic run-around, making it even more challenging for those of us who suffer from fatigue and debilitating symptoms. For my entire adult life, I have been appalled at how the profit-motivated medical system exploits those that do not have the access to information and resources that could alleviate their suffering. Perhaps they are values shaped by my Quaker forebears and instilled by later generations. Now that I am one of the exploited I have an even more personal stake in this injustice. The selflessness of those in the Lyme community have inspired me to do my part in return.

Albuquerque, NM, US

Jennifer Leon
About Jennifer

After being diagnosed with Rheumatoid Arthritis in 1975 at the age of 5, and spent the rest of my life (now age 43) seeing doctors after doctors of the pain I was experiencing. I was sent always back to a RA doctor where I had full body scopes done and test after test where they couldn\'t tell the inflammation. I describe the pain the same way since I can remember. I\'d say I couldn\'t explain if it were in my joins, the muscles leading to the joints or the nerves throughout my body. I explained that I felt like the flu and ached from head to toe. After moving from Pennsylvania to Colorado, my symptoms got worse and sought out doctors here. Again first being sent to a RA specialist and was told \'probably fybromalgia\' and hearing other doctors say \"you have something medicine hasn\'t figured out yet\".. and even one calling me \'bi-polar\'. I then went to a functional doctor who went through a series of treatments to balance my immune system (also have Raynauds), eliminating foods (still gluten-free) along with neurological and other tests then when nothing changed my pain. We then did the Western Blot lymes test... to which came out positive.

Denver, CO, US


Hello everyoneI am interested in becoming an ILADS Social Ambassador because I believe so many of us already are.


Jesse Maye
About Jesse

My son and I have both been diagnosed with lymes. This is an epidemic. I've grown an interest in learning more about this debilitating desease. This is the future.

Crivitz, Wi, US

Jessica Garay
About Jessica

After being treated for Chronic Lyme Disease and Bartonella for three years, I finally see what I\'ve hoped to become. I am in good spirits, thinking clearly, and healthy! It\'s been a long time coming, but I realize I\'m one of the \"luckier\" ones. I was treated with oral antibiotics and then completely herbally, not IV. I was able to work and pay my bills thanks to supportive administration at the public elementary school where I work. Though I was very often fatigued, I was never completely bedridden. Unfortunately, I\'ve experienced Lyme, but not as bad as it could be. I have friends and loved ones completely bankrupt from this disease, financially and at times emotionally. Now that I am better, I want to help. Becoming a ILADS Social Ambassador can help me do just that.

Colonia, NJ, US

jade dodson
About jade

Hello, My name is Jade, I live in Indiana PA, I\'m 25 and currently work as a bank teller with various side jobs/projects and hobbies i enjoy! About a month ago, actually at work i leaned over to pick something up and felt a strain in my shoulder, i thought i over extended a muscle or pulled something, but i discovered i had a lump just above my collar bone. The next day i could feel the same lump just bigger under my armpit on the same side as the lump above my collar bone. The lumps seemed to cause pain and discomfort in my left shoulder, i proceeded to see a doctor the following Saturday. She felt around my should and noticed a scab right on top of my shoulder and asked me about it, i had thought it was a pimple, i hadn\'t recalled being bit by anything. The doctor told me what i was feeling was my lymph node gland, it was swollen because i probably had an infection of some sort, they took blood. I got the call couple of days later that i had Lyme disease. That week i had the worst symptoms, they are lessening every week, lately I\'ve been experiencing the daily fatigue, headaches and focus issues. I finished my two weeks of antibiotics, just have to get blood work again and follow up with doctor. Thanks! Jade xoxo

indiana, pa, US

Jim Wagner
About Jim

My wife has chronic lyme disease, and has had for a number of years. It is unfair to non-treat this known disease, especially the CDC.. We have done all the research, and are presently on IV antibiotic treatment. It is so unfair to those that cannot afford to be treated. Having to go through life like this, when this disease can be treated, is horrible.

Spicewood, TX, US