Social Ambassador Profiles

These amazing people have taken on the task of being LymePowerOfUs Social Ambassadors. They are dedicated and passionate and want to transform that dedication into actions that increase awareness of Lyme disease, raise funds to train physicians and support LymeTap, and put an end to the growing epidemic of tick-borne diseases. Their stories are sometimes heart wrenching, often very sad, but more often than not filled with inspiration and hope. These are the faces and stories of people that are making a difference. Find out how you can join them.

Jibril SAMB
About Jibril

Thank you to give me this this opportunuity to become your ambassador I join to your cause and organization for many reasons from some informations, I am sure lyme disease is present in my country and many people can\'t identify it tha\'s why I want to join you and explain the cause, and the consequences of this disease and to give to my people all prevent solutions and how to fight the lyme disease

Dakar, Dakar Plateau, SN

Jill Justiss
About Jill

In 2003 my health took a dramatic downturn. I was only 31 years old, but found myself crawling up my stairs. I went to several doctors who ordered dozens of blood tests. It became clear to me that none of my doctors believed I was ill. I decided to make an appointment with a rheumatologist who recommended that I see a specialist in CFS, and I was diagnosed with Chronic Fatigue Syndrome. My new treatment included an antibiotic for mycoplasma. After one year of treatment I improved to around 60%. Meanwhile, my identical twin sister had begun to have symptoms very similar to mine. The doctor ordered a western blot to test for Lyme. The results revealed that she was positive for Lyme disease. I knew immediately that I also had Lyme and that all my past negative results had been false negatives. 9 years after my first symptoms I asked for a test from a private lab and was found positive for Lyme disease. After seeing a lyme literate doctor I am feeling better than I have in many years. I know my story is a common one among those with lyme disease and would like to help change this in any way I can.

Katy, TX, US

Jim Leavens
About Jim

Until his death in a skateboard accident in July, our son Robert suffered from Lyme for four years. Due to a negative blood test result, he was not correclty diagnosed for the first two years, even though we found a tick on his neck and he exhibited the classic initial symptoms. This made treating his Lyme once discovered, much more difficult. In addition to struggeling from all the Lyme and coinfection symptioms, he also unnecessarily suffered from the result of improperly being medicated for depression which resulted in mutliple hospitalizations. I want people to know they could save themselves or their children from this kind of scenario if they understand the potential for Lyme, the sysmptoms, the amount of inaccurate test results and to question their heath care providers in treating this disease.

York, PA, US

Jenelle Conklin
About Jenelle

I was suffering from chronic lyme disease and other co-infections my entire life, thinking my daily pain was that of a normal persons. I did not understand that I was different from everyone else that I grew up with. Finally my aunt who is a medical doctor, treated Lyme for a short period of time, set me up with a doctor where I am living to be tested through I-genex. I was told it would be a 4 year recovery due to the length of me being ill. With a strict gluten free diet, medication, and a determined mindset I cut that in half to a 2 year recovery. I had to quit playing college basketball at UCSD, I took a medical leave from school, I thought my life was ruined forever. Now that I am cured I now suffer with a transition to a \"normal life,\" which is very scary to me since I have never experienced this side of life. I ultimately want to help others who have gone down the same path as I have. I have so much passion for Lyme and helping others and want to do whatever I can to be apart of the Lyme community.

san diego , california, US

Jayme Walker
About Jayme

I just started treatment for Lyme disease with an LLMD. After years of being told \"nothing was wrong with me\" I finally have some answers and I want to help spread awareness. I am a kindergarten teacher and an independent consultant. I use social media every day to run my business and I\'m interested in being a Social Ambassador with ILADS. Thank you!

Springfield, VA, US

Justin Matulonis
About Justin

Originally got lyme in 1990 when i was 10 , a year later had bells palsey for a month. In the past 15 years ive had around 5 more bites. I was treated originally for 3 weeks but dont think that was enough since i had bells palsey a year later. I went through high school with concentration issues, memory issues , daily headaches, fatigue etc. For the past 7 years i have been getting muscle weakness and cramping getting worse each year. Also cognative and speaking issues now along with blurred vision, ear ringing , burning and tingling throughout body. Ive been to at least 10 doctors in past 15 years and they all denied lyme disease . Told me to exercise more. I was never overwieght. Since this past december i found a llmd in Mt Kisco who i have been going to since. There hasnt been much improvement yet but i know it can take some time , knowing i have been sick for so many years. I was just on rocephin for a month covered by United Healthcare but they just denied a second month. I was told that they never cover more then a month in New York. Will have to pay out of pocket for medicine.

Deer park, Ny, US

Jenny Meehan
About Jenny

Several years ago my husband started acting out of sorts and began drinking more than socially, I knew something just wasn\\\'t right. He began having terrible leg pains, panic attacks and severe headaches. Everyone, including Doctors just blew it off as stress due to the economy. Finally, after many ER visits and Dr. visits he was diagnosed with Lyme. He was treated for three months with Doxycycline and seemed to be getting better but then things just took a turn for the worst he suffers from tremors, paranoia, anxiety and severe pain. 10 months ago my 16 year old son who played sports his whole life even though he suffered from knee and ankle pain, could barely walk or get out of his bed because he had extreme light sensitivity. I went fro. Dr. to Dr. With everyone telling me it was everything from stress, hormones to fibromyalgia. I knew something was destroying my family and refused to give up! My son has been in treatment for 7 months and is nowhere near being back to normal. He still can not attend school full time and is constantly losing weight. I am just a normal housewife who feels so much more needs to be done! This is a silent killer with a horrible dark side! I just want to bring awareness to this horrible disease.

River vale, NJ, US

Jenna Good
About Jenna

Recently diagnosed with lyme disease in Aug 2015. Regular testing was negative, but culture done and came back fastest my initial doctor has seen. I\'ve had symptoms going back to middle school. Years of dealing with unrelenting fatigue. Normal sleep study. Pregnancy recently sent my body for a whirl. More symptoms appearing. Now seeing a LLMD in Philadelphia and a waiting test results as he did thorough work up. Go back inNovember. I work in medical field as nurse, currently in GI field. I find it aggravating to see a lot of ppl presenting with lyme s/s and its not being tested for or told they are negative based on cdc guidelines. I want to do more and help ppl and get the word out about the disease. It bothers me knowing there are many ppl like me who go indiagnosed or misdiagnosed for years. I want to help.

Mechanicsburg, pa, US

Josephine Fischer
About Josephine

I contracted Lyme Disease 5 years ago. I went undiagnosed for 2 years before we were able to figure out I had Lyme and by that time all my organs were shutting down, my digestive system was a mess and my heart wasn\\\'t working well. After the first 2 years I found a woman in Utah who specialized in treating Lyme and for the next 3 years I traveled between Philadelphia and Utah to get treatments through an IV. I want to be an Ambassador because I want to make a difference in spreading awareness about Lyme so that in the future people don\\\'t have to go undiagnosed for as long as I did and can get help sooner.

newtown square, PA, US

Vicky Millward
About Vicky My husband is a medical doctor now practising natural medicine but had to retire due to Lyme that he contacted around 17 years ago. I am starting to see many Lyme patients who have had chronic illness for many years! I am a homeopath & naturopath for over 30 years. I intent to spread the word but being blocked even sending blood tests to Germany. kind regards Vicky Millward

Bournemouth, Dorset, UK