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my beautiful aunt who was the healthiest person i know...and the most beautiful soul....died today.....she went from running triatholons 2 yrs ago to this.... ....i talk to so many people...no one knows anything about it. ...i am in northern illinois...so close to wisconsin, and many many around me travel there..... i have read so much about lyme disease and it is unbelievable how bad and that i have yet to run across a person that knows anything about it.... ....i want to be a lyme educator and speak to groups.....
I am fifteen years old and my older sister was diagnosed with Lyme disease about six months ago. It has been a long and terrible journey for her as well as our family. For months on end we have been searching day and night for new cures but nothing seems to be working: antibiotics, homeopathic remedies, vitamins. Each day I watch my sister get an IV for different kinds of medicines and slowly she is recovering. I grew up in New York City where ever doctor, child and parent is aware of how dangerous Lyme disease is; but once we moved out to California, no one seems to believe it is a real disease. Due to the fact that the CDC does not recognize Lyme as a real disease, many doctors disregards its existence. Lyme is difficult to diagnose and even more difficult to diagnose, so are doctors around the world giving up? Do they not know what to do, or is it the citizens around that are unaware the damage that can be caused by one bite from a tiny insect? I am interested in becoming an ILADS Social Ambassador because I as a bystander of this lengthy, painful disease I want more people and doctors to know Lyme disease is real and can happen to anyone. I want to be a part of curing patients and spreading knowledge all over the world.
I am from the USA (bitten in 2005 in SC) but currently live in the UK. I have been misdiagnosed and mistreated by the NHS for 9 years. I have had to take matters into my own hands (self treatment) because the NHS deny the existence of chronic Lyme. The testing is flawed and if you are lucky enough to be diagnosed you will only receive 6 weeks of Doxycycline. Of course then you are healed and no further help is given. I started my blog/website over a year ago after borrowing the money to be tested via Igenex. I have a private Lyme group on Facebook and have @800 followers on Facebook & Twitter. My blog gets about 6,000 hits a day. So, obviously people are realizing that there is a problem! I am about 95% better now, but this time last year I was bed bound, unable to work, drive or function as a normal person. I still have bad days, but I am fighting this hard. I still haven\'t been tested for Bart or Babs. Funds are short. I have managed to have some testing done and so far on top of Lyme I have RMSF, Tick Borne Encephalitis, and 6 more viral infections (Dengue etc) I am committed to raising awareness and would love to be a social ambassador for ILADS.
Hi, my name is Kelly. My father has been suffering from lyme disease for three years. He recently was diagnosed with Lyme after numerous negative testing. Trying to do my part to help!
I struggled with Lyme Disease, as well as co-infections and the myriad of other complicated heath issues that can accompany Lyme Disease, for about 10 years. Getting diagnosed was half of the battle and it was not easy. The journey was long and painful and there were times I was ready and attempted to give up. I have now reached a point in my life where I am by most standards considered \"normal\" and \"healthy.\" I\'ve been working in Integrative Medicine centers due to my interest in Lyme Disease and a strong belief in medicine that looks at patients holistically and individually. I want to help end the stigma surrounding Lyme Disease, I want people to be diagnosed properly and early and especially consider the wide array of symptoms that Lyme Disease can present. I want to help change the discussion on Lyme Disease to one of productivity and resourcefulness versus fear and misunderstanding. I believe it can be done and I think every voice matters in making this change.
After three years of the medical community denying my illness I was diagnosed with Lyme. My goal is to advocate for those who do not have a voice in their fight against Lyme.
son of 30 was totally blown off by UVA med school neurology department ~~ A WORLD CLASS med SCHOOL ~~~ NOT ~~~ total incompetence and arrogance !!! 2008~~ TOLD him he was a wack JOB ~~ how CRUDE ~~ he begged them to due west coast lyme test ~~ they REFUSED !!! unbelievable DOCTORS ARE THE MAIN PROBLEM ~~ with LYME ~~ Their ARROGANCE !! SON had to travel 100 miles every other week Vienna VA to get 2 years of help form MD ANDREW Levin an internist from Lyme Conn in VA who has had Lyme twice. He does not believe in stand intravenous Antibiotic ~~ but Son gradually got better ~~ with many concurrent herbals ~~~ I am sure part of his cure was miraculous !! 5 years latter is functional and always working thru 5 years ~~ but brain fog and floaters in sight were really debilitating ~~~
I was bitten by a deer tick in late May 2013. Due to previous conversations with my naturopathic doctor and witnessing a number of friends who have \'chronic Lyme disease\' I knew that I needed to be proactive in my approach to treatment. I was skeptical of the approach of my local medical professionals and went back to my naturopath and followed his protocol for preventative treatment. While I do not believe that I have Lyme I am meeting more and more people who are suffering due to mis- or missed diagnosis and I feel the need to start educating the community around me.
I have been fighting my battle with Lyme disease for almost 10 years now and I\'m doing really well. I\'m a pro drummer in a rock band from Dublin, Ireland , and we are getting a big name for ourselves , so if things go well I might be in a position to reach the masses through our fans around the world etc, like daryl hall from hall and Oates. My band is Stone trigger.. Niall..