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After 17 years of unrelenting fatigue and pain I was near death. I was in a wheelchair most of the time, having seizures and blackouts. I had been saying for two years that I was dying, even though I didn\'t have a diagnosis. Fortunately I finally saw someone who knew about Lyme and ordered a test. knowing it was Lyme was one aspect of the disease, finding a treatment center was another. I went through treatment at Shea medical and have my life back. Everyday is a fight
I was first diagnosed with Lyme in 2010. I have had recurring symptoms, but have been unable to get the diagnosis. I am looking for an LLMD who can help. in the meantime, I continue researching and am interested in making this more known. It should not be this hard to get treatment.
I am a Licensed Professional Counselor in Virginia. I work with patients that have the diagnosis of Lyme and I myself have been recently diagnosed. The mental health field has very little awareness of Lyme disease and its effects on people. I want to be that voice to reach out and educate people in my field.
Over the past decade and more I have been seen by as many as 10 different medical physicians for a variety of symptoms, and you canít imagine the amount of money that comes along with all the copays and medication. Everything came to a head last fall when my health took a turn for the worse and I pressed doctors for answers and got copies of my personal medical records. Over 10 years of being misdiagnosed with everything from MS, to Parkinsons Disease, I was finally properly diagnosed with Chronic Lyme Disease in 2014. It\'s been quite a struggle as I live in Texas and my LLD practices in Louisiana. I\'ve had the worst time trying to find a medical doctor who would treat me in Texas as it\'s quite the controversy. In addition to Chronic Lyme Disease, I also have two co-infections, Bartonella and Babesia. Every day is a struggle to find relief. My goal in becoming an ILADS Social Ambassador is to help create awareness and help get the word out about this disease that I know is impacting so many in this country.