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I\\\'ve struggled with chronic Lyme disease for many years before finally getting an official diagnosis in 2007. My road to recovery was long, painful and full of ups and downs. After changing my paradigm on health and healing, I finally made improvements that allowed me to regain a normal life style. Initially I embraced Western medicine\\\'s view of the body as a machine. I used aggressive antibiotics to Kill the bacteria. As a result my immune system became more compromised. The very infections that were initially threatening my life became more virulent and frequent. That\\\'s when I started to look at holistic approaches that support the body\\\'s natural ability to heal it self. This made a difference in my health but the turning point for me happened when I started addressing the underlying emotional factors that kept my immune system suppressed. Most people are unaware of how unresolved emotional factors impact health. I bring scientific proof of this and hope to help people get a clearer understanding of this fact.
Interesting in helping to share the message
My brother suffers from Central Nervous System Lyme and Encephalitis which was misdiagnosed for over 10 years. If his Lyme disease had been properly diagnosed from the start, the disease would not have been as serious and life threatening as it had gotten. I was crowned Miss New Hampshire Earth 2016 and have made it my mission to spread awareness about the seriousness of Lyme and its potential misdiagnosis.
My name is Alyssa and I am 24 years old. Roughly two and a half years ago I was diagnosed with Lyme Disease and Ehrlichia. My brain functioning has been off and at times has led me to question my sanity. My joints and muscles that used to be strong and athletic have become sore and weak. My moods go up and down like the Sun. Since diagnosed, I\'ve heard countless doctors opinions, taken strong medicines, and barely seen any results, I am frustrated, yet hopeful. This isn\'t the flu. This disease is strong and unlike any other, which is why I want to do everything possible to cure it. I want to speak out, to try to explain symptoms which a lot of people can\'t put to words. I want to raise awareness and get funding. Not only do I want to be cured, but I want everyone to be cured.
http://www.meetup.com/New-York-City-Lyme-Disease-Support-Meetup/ I am a late stage neuro lyme patient. Nearly 2 yrs into treatment with Dr. Cameron and I am feeling better. (A Big Thank You and Hugs for Dr. Cameron, Jennifer and his entire team!). Given my health history, I suspect I've had the disease since childhood - I grew up on Eastern Long Island and the coast of Connecticut. I am an accomplished business professional, licensed acupuncturist, sound healer and long-time meditation practitioner. My wish is to put all of my skills, knowledge and experience to use as a Lyme Warrior and Advocate. I founded the NYC Lyme Support Group in January 2015 and would like to build a community of support AND to learn as much as I can to provide our members, family, friends, colleagues and the public with current, accurate information about all aspects of Lyme. Education and Public Policy are of particular interest. Theses 2 areas are critical now in the advancement of appropriate and necessary treatment of Lyme. As a nation, I believe we are at the cusp of a nation-wide health emergency and I want to help.
Due to a late diagnosis - I saw more than 20 doctors before I could get someone to listen that I had been bitten by a tick - my Lyme disease has attacked me neurologically. Every system in my body has been affected. I was studying for medical school at the time of infection. My memory was so affected, I nearly gave up on that goal. As my memory has improved, so has my resolve to see my goals through. I plan to go to medical school and eventually treat Lyme patients. I want to advocate for Lyme disease patients, prevention, awareness, etc. I can\'t think of a better way to learn those advocacy skills than through your social ambassador program. Thank you, Amy
Social Media Maven. Wife to a Wounded Warrior & Mother to 3 kids. Lyme Disease Fighter. Diagnosed in 2008, doctors quickly realized that I\'ve had Lyme Disease and co-infections for my entire life, possibly contracted congenitally, as my mother has also had Lyme since a young age. The most severe symptoms that led me to diagnosis, after dozens of specialists were crushing headaches and recurring kidney/bladder infections. After treatment by an LLMD (Lyme Literate Medical Doctor), my conditions improved and I was able to compete in an Ironman Timberman Sprint Triathlon in 2011 for Lyme Disease. My mother and I realized that the best way to prevent Lyme Disease is with education and prevention since it\'s so misunderstood by most of the medical community. We founded Lyme411.org to share information about Lyme and Other Tick-Borne Illnesses welcoming people with these diseases, their families and friends in a monthly discussion group with members from a wide range of backgrounds. We share experience, information and coping strategies in a postive, non-judgemental environment. We hold or are involved in many awareness events throughout the state and country.
I was clearly bit by something (I thought it was a spider bite) in 2000 when I was 9 months pregnant with my now almost 13 year old daughter. I actually went to the local Emergency Room because it turned into a huge abdominal rash so much so I thought I had a septic infection. I had moved to Western Massachusetts just 10 months before from New York City and I was familiar with spider bites but knew little about Lyme. I had heard a little about Lyme so at the ER I asked \"Could this possibly be lyme?\" and the doctor when out back to consult and came back saying \"No lyme this far north\". Within 18 months, lost all sight in one eye, falling all the time, MRI docs and neuro told me I had multiple sclerosis and started me on immunotherapy drugs (to reduce my supposedly overactive immune system). 12 years later after psychological whiplash of denial and then acceptance and severe illness where I could not walk nor see, that ended in 10 days of fever (fever is NOT MS) I got referred to a lyme specialist. Just on simple intake alone she guessed it might be lyme. First month of oral low dose antibiotics and years worth of MS symptomology vanished. Been on low dose oral for 10 months now. Life is returning. Shocking I lost 12 years.
I was bit by a tick in September of 2011, at the age of 12. I never got a rash, no symptoms until a year later. In September of 2012, I woke up one morning unable to move. I was rushed to Saint Peters who stabilized me and put me on an ambulance to Children\'s Hospital of Philadelphia because they were better equipped. It took them a month to figure out what was causing my problems: Lyme. I had many procedures and treatments to keep me stable while they were trying to diagnose me. By the time they figured it out, the bacteria had done significant damage to my central nervous system. They were shocked to see my Lyme titers were through the roof. I was sent home months later after treatments and was in a power chair only able to move my right hand. They left me with little hope of recovery. I was then sent to Children\'s Specialized where I was inpatient for a few months. There, I recovered a lot of movement. After being discharged, I went for outpatient therapy for 4 years - to this day. I am now able to use almost all of my body, and am working on transitioning from my manual chair to crutches!
Last year my 4 year old son had a small bug bite in his arm pit. We assumed he was bit by a spider. A few days later he developed the infamous bulls eye ring around his arm and shoulder. I quickly took him to urgent care and he was put on amoxicillin for two weeks. About a week in he develop hives and was taken off the antibiotics. Before we could follow up, he became severely ill with bronchitis that turned into bacterial pneumonia. Once the pneumonia was cleared we followed up with a blood test that indicated he still had Lyme. He then took amoxicillin for two weeks. We wanted to know what was next and our peditraican said that was it! There is no standard follow up after the antibiotic treatment. Fast forward a year later and my sons immune systems seems compromised staying ill for long periods of time. I\'ve joined as an ambassador to bring more awareness about Lyme Disease and seek answers for my son and other affected by this growing epidemic.