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My Lyme Guide – organization resource manual for patients

My Lyme Guide is a business dedicated to helping patients and their caregivers with the challenges of managing tick borne diseases.

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The Governor’s Task Force on Lyme Disease

Governor Bob McDonnell and Secretary William Hazelconvened Lyme Disease Task Force

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Could Lyme Disease Be Transmitted To Unborn Kids?

One of the most shocking findings is that pregnant women may be able to transmit the disease to their unborn children.

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FRIDAY, July 1st : Lyme Disease chat with Dr. Lawrence Zemel and Dr. Daniel Cameron

Chronic Lyme disease: Does it exist and should it be treated with long-term antibiotics?

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Va. Seeking to Slow Spread of Lyme Disease

Lyme disease is a growing health threat in Virginia, but a special task force is looking for ways to slow its spread.

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HealthWatch: Bay Area Lyme Disease Patient Fights Insurer

There is an insurance problem, said Dr. Christine Green, Mona’s specialist. Green said many advanced stage Lyme disease patients go through the same ordeal.

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Lyme TAP – Lyme Testing Access Program

Lyme-TAP is a new patient assistance program helping patients with financial hardship pay for diagnostic Lyme testing who would otherwise be unable to afford testing.

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Two sides of a disease

The problems hit her in April of last year: severe fatigue, headaches, nausea, fevers, insomnia.Seventh-grader Victoria Lehtonen went to her primary-care doctor and was prescribed a short course of antibiotics, but once the medication was used up, her symptoms returned.Victoria proceeded to doctor after doctor with her mother, Karla, but was diagnosed with "post-infectious fatigue syndrome" and was sent home, still suffering.

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Proof that chronic Lyme disease exists

The evidence continues to mount that Chronic Lyme Disease (CLD) exists and must be addressed by the medical community if solutions are to be found. Four National Institutes of Health (NIH) trials validated the existence and severity of CLD. Despite the evidence, there are physicians who continue to deny the existence and severity of CLD, which can hinder efforts to find a solution. Recognizing CLD could facilitate efforts to avoid diagnostic delays of two years and durations of illness of 4.7 to 9 years described in the NIH trials. The risk to society of emerging antibiotic-resistant organisms should be weighed against the societal risks associated with failing to treat an emerging population saddled with CLD. The mixed long-term outcome in children could also be examined. Once we accept the evidence that CLD exists, the medical community should be able to find solutions. Medical professionals should be encouraged to examine whether: (1) innovative treatments for early LD might prevent CLD, (2) early diagnosis of CLD might result in better treatment outcomes, and (3) more effective treatment regimens can be developed for CLD patients who have had prolonged illness and an associated poor quality of life.

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Review Panel Says Lyme Treatment Guidelines Don’t Need To Change

Dr. Daniel Cameron, the immediate past president of the International Lyme and Associated Diseases Society, which acknowledges the existence of chronic Lyme disease, said he was disappointed but not surprised. Insurance companies may use the guidelines to deny coverage for long-term treatment, he said, but doctors will continue to see patients with chronic problems that require treatment."I don't think the IDSA is going to continue to offer much leadership in terms of solving the chronic Lyme disease problem," he said. "I don't see them welcoming the challenges of somebody that's been sick for months or years."

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