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FOR IMMEDIATE RELEASE:

 

ATTORNEY GENERAL GETS EARFUL ON LYME DISEASE

CONNECTICUT HEARING COINCIDES WITH NEW GUIDELINES ON LYME

 

Hartford, CT January 30, 2004 Connecticut’s Attorney General and Department of Public Health officials were barraged Thursday with complaints that Lyme disease is too often under reported and misdiagnosed. A “patient’s panel” and an overflow audience at the Legislative Office Building in Hartford was packed with people who expressed their belief that Lyme is a grossly misunderstood disease that is costing patients their livelihoods and their health.

The AG’s hearing on Lyme disease came at a time when the International Lyme and Associated Diseases Society (ILADS) has just published new peer reviewed guidelines for diagnosing and treating Lyme disease to help physicians combat the fastest growing vector-borne disease in the United States. By conservative estimates, hundreds of thousands of US victims alone may be infected with Lyme every year, yet there is no evidence-based comprehensive system for diagnosing or treating Lyme disease, and there is no “standard of care” for managing the disease.

The stories of Lyme sufferers go from sad to tragic. Their symptoms range from headaches, fatigue, and joint pain to the extremes of hallucinations, paralysis, and blindness. The 13-page “evidence-based” guidelines provide physicians solid direction on which patients to evaluate, which tests to order, which medications to use, and how to address concerns about antibiotic use.

According to ILADS president, Dr. Steven Phillips, who testified at yesterday’s hearing, “these guidelines will provide physicians with vital encouragement and validation, as well as confidence they’ve sometimes lacked when trying to detect and treat the disease. Misinformation and conflicting views have caused inconsistencies and confusion; sometimes at great costs to patients. ILADS’ guidelines come from some of the most respected, published and experienced medical experts in the industry. These guidelines should make a big and positive difference in patients’ lives.”

For more information and a copy of the guidelines go to:

ILADS’ website: www.ilads.org

Patients and medical experts available for interviews.

ILADS thanks Turn the Corner Foundation and the LDA for their non-profit financial support of the guidelines.

To purchase the guidelines, you may download the order form. This requires Adobe Acrobat Reader, which may be obtained by clicking below on the Get Acrobat Reader icon:

 

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