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Publications by ILADS Members

 

Lyme Disease Treatment Is Source Of Contention

By Sandy Berenbaum

August 5th, 2006

 

I applaud The Courant for publishing the July 31 Other Opinion article "Medical Revisionists Threaten Effective Lyme Treatment" by Raphael B. Stricker, M.D., president of the International Lyme and Associated Diseases Society.

In my psychotherapy practice, I see children and adolescents who have serious neuropsychiatric manifestations of chronic Lyme disease. These profoundly affect their lives, in and out of school. Most have been misdiagnosed in the past by at least one doctor who restricts his or her view of Lyme to that of the Infectious Diseases Society of America and who denies chronic Lyme. It often takes years for the parents to find an answer to their child's devastating headaches, stomachaches, sleep problems, profound fatigue and problems with mood and cognition; to learn that their child does indeed have Lyme; and for treatment to begin. At this stage, treatment is usually longer and more costly, and those years the child lost will never be regained.

I see these children when they are very ill, and then I see these children's health restored after months or years of treatment by doctors who understand chronic Lyme and use the ILADS treatment guidelines. I see these children return to school, sometimes after months or years of absence, and go on to college.

How much of this do the Lyme deniers of the IDSA see? If they saw it, would they be willing to take another look at the damage their narrow-minded thinking continues to do?

Sandy Berenbaum
Southbury

The writer is a licensed clinical social worker.

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